"Lauren was not expected to live at birth, due to severe pulmonary insufficiency. She was also born legally blind, with a condition known as micropthalmia. She also has been diagnosed with Cerebral Palsy and Epilepsy, following a cardiac arrest and respiratory failure when she was 13 months old. She now has a trach and g-tube, and has home nurses helping out with her care. She is non-ambulatory and non-verbal, completely dependent on us for her care, and probably will be for life.
In order to provide the best possible care for Lauren, we decided it was best for me to stay home with Lauren and our other two children, which means we are providing for her special needs and medical expenses on only one income. With the rising costs of medical care and escalating insurance costs, it becomes very difficult to provide the care she needs without assistance of some kind. My husband is self-employed, so we purchase our own individual insurance policy for the family at a rate of $18,000 per year, which does not leave a lot for other necessities like reliable transportation. Even at this rate, there are significant out of pocket medical expenses which are not picked up by insurance or Medicaid.
In order to help out with some major upcoming expenses for Lauren, we have started a GoFundMe page. We also have a CaringBridge site which we started when Lauren was in the NICU for two months, that tells her ongoing story from birth."
These people listen to the show and reached out. I'm doing the same.
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